News
AKESO 2022 - THE COMPLEXITY OF LONG LYME AND THE ROLE OF HERBS AND THE HERBAL PRACTITIONER
We are delighted to announce the AKESO 2022 conference will be held on:
Saturday 26th November & Sunday 27th November 2022.
You can now book on the following link
(This event has finished).
You can also contact the event organizer at
gavramovic@mater.ie (+35317164562)
if you experience any technical difficulties
CHRONIC LYME/CO-INFECTIONS & LONG COVID - WHAT DO THEY HAVE IN COMMON?
CHRONIC LYME/CO-INFECTIONS & LONG COVID - WHAT DO THEY HAVE IN COMMON?
Professor John S. Lambert, Mater and Rotunda Hospitals, and UCD School of Medicine Dublin
LYME DISEASE - SPEAK TO THE EXPERT (1st of October 2022)
We are delighted to announce that Dr Jack Lambert is holding a question & answer session for patients on
Saturday 1st of October 2022 from 10.30 to 12pm.
This is an opportunity for patients to ask some questions about Lyme disease. The event is free of charge and will be held online on Zoom.
Congenital Lyme & co-infections
From: Montecalvo Platform for Tick-Borne Illness Medical Education
John Lambert, MD
Full Clinical Professor at University College Dublin School of Medicine and Consultant in Infectious Diseases and Genitourinary Medicine at Mater Misericordiae University Hospital
Description
This module provides an overview of perinatal risks and outcomes related to congenital Lyme and co-infections.
Learning objectives
West Lothian Bulletin (Spring 2022) - Partnership between LRC and West Lothian Council
The West Lothian Bulletin, a free paper circulated to all West Lothian residents by the local council has an article regarding the partnership between LRC and West Lothian Council and Gus’s charity bike ride. Please have a look, as it also includes really good awareness advice.
From: West Lothian Bulletin (Spring 2022)
(Article can be found on Page 18)
ICD-11 and Lyme Borreliosis - New International Classification of Diseases (ICD-11) codes
After a scientific review process that took multiple years and documented testimony from patients and experts, it’s time to celebrate a milestone for the Lyme community: The new International Classification of Diseases (ICD-11) codes have taken effect as of January 1, 2022. These codes include important updates that recognize persistent and congenital Lyme disease, along with other improvements.
Living Well - Living Well with Lyme Disease
Your toolkit for better health
Are you living with LYME DISEASE?
Examples include (but are not limited to) Rash at site of bite or on other parts of your body,
unexplained hair loss, tiredness, aches and loss of energy etc.

What is the Living Well programme?
Living Well - A programme for adults with long-term health conditions
Your toolkit for better health
Living Well after a diagnosis of Coronavirus are you living with Long Covid / Post Covid-19 Syndrome?
Examples include (but are not limited to) joint or muscle pain, brain fog, fatigue, pain, anxiety, low mood, chest pain etc.

Autoimmune response found in many with COVID-19
At a Glance
- In a small study, about half of people hospitalized with COVID-19 had antibodies in their blood that could mistakenly attack the body’s own proteins and tissues.
- More work is needed to see if these autoantibodies contribute to the symptoms of “long COVID,” or have other effects later in life.
From: Autoimmune response found in many with COVID-19 | National Institutes of Health (NIH)
Tulane researcher discusses the evidence for persistent Lyme and promising new treatment strategies
Are our current #Lyme treatment protocols all wrong? Read the new evidence on Lyme persistence beyond 28-days of doxycycline.
Lyme testing: The good, the bad, and the ugly
In the free medical education course, “Serologic testing in Lyme disease,” Elizabeth L. Maloney, MD, a Minnesota family physician and tick-borne disease educator, reviews published studies that evaluate current Lyme disease tests and discusses how these tests should be used in diagnosing patients.
Mothers Against Lyme Calls for Retraction of False Information on Congenital Lyme in IDSA, AAN, ACR Guidelines
Retraction request cites harm to pregnant women and children
Montecalvo Platform for Tick-Borne Illness Medical Education
A useful resource site we came across recently can be found here:
Montecalvo Platform for Tick-Borne Illness Medical Education
Invisible International: Montecalvo Foundation
About the platform:
At Risk Groups
TICK-BORNE INFECTION AT RISK GROUPS
Targeting of Personal Protective Advice
The following is a breakdown of potential at-risk groups and target markets for personal
protective messaging. This a general guide and not exhaustive.
The pdf contents includes:
FRAMEWORKS FOR CONSIDERING POTENTIAL RISK
INDIVIDUAL/PERSONAL ‘TARGET MARKET’
Lyme Resource Centre now sells charity cards
Lyme Resource Centre now sells a range of birthday, general and Christmas charity cards. Pop over to our to our online card store and find something to send to family and friends. As well as being attractive, they help us raise awareness.
Phage-Targeting PCR Test Picks Up Early Lyme Disease
An investigational polymerase chain reaction (PCR) test that detects the presence of a viral gene in Lyme disease–causing bacteria can distinguish between early and late infection, according to the results of a study that the authors describe as "systematic and comprehensive."
Celebrating Our Second Year as a Charity
At the end of March 2021, we marked the second year anniversary of our charity. We reflect with pride on what have we achieved so far.
Highlights of 2020-21
Lyme Resource Centre's second year has seen more efforts to raise awareness of all tick-borne diseases, including Lyme disease. This year we have had a particular focus on professional education.
Angus Walker's #TickOff4040Challenge
A huge thank you to Angus Walker! In the year he ticks off hitting the ripe old age of 40 he's raising money for Lyme Resource Centre by aiming to ride at least 4040km throughout 2021 as part of his #TickOff4040Challenge!
Defendants settle in Torrey vs. IDSA US Lyme lawsuit
As of 16th November 2020, all eight insurers have now settled in the US lawsuit on Lyme disease, Torrey vs. IDSA et al. The lawsuit was brought by 24 Lyme disease patients in the US against the Infectious Diseases Society of America (IDSA), 8 insurance companies, and 6 physicians involved in writing and enforcing the IDSA guidelines.
The suit focuses on the denial of longer courses of antibiotics to patients under the IDSA guidelines, which rigidly hold that 10-to-28-day courses almost always eliminate Lyme infection.
Public Health England announce cases of human Babesiosis and probable tick-borne encephalitis (TBE) in England
Public Health England have announced the diagnosis of a case of human babesiosis and a probable case of tick-borne encephalitis (TBE) in England.
Celebrating Our First Year as a Charity
On 21st March 2020, we mark the first year anniversary of our charity. We reflect with pride on what have we achieved so far.
Lyme Resource Centre urges for action on tick-borne diseases in the wake of Justin Bieber's announcement he has Lyme disease
Justin Bieber has revealed that he is suffering from Lyme disease (https://www.bbc.co.uk/news/entertainment-arts-51041033). His announcement comes in the wake of a number of developments that are changing attitudes towards tick-borne diseases in the US. Lyme disease is six times more prevalent than HIV, yet until now the Lyme budget of the US National Institutes of Health (NIH) has been less than 1% that of HIV.
Pet owners at increased risk as deadly tick-borne disease spreads throughout Asia
The Telegraph reports on a deadly new tick-borne virus. It is not present in the UK, but it is spreading rapidly throughout Asia.
The new virus – severe fever with thrombocytopenia syndrome (SFTS) – is spread by tick bites, has a fatality rate around 30 per cent, no effective treatment, and should be treated as a biosafety level three pathogen, on a par with diseases such as Ebola.
Report of Lyme and Tick-borne Disease workshop at National Institute for Health Research on 22nd November 2019
On Friday 22nd November, a patient representative from Lyme Resource Centre attended a meeting in Liverpool hosted by the National Institute for Health Research and involving Public Health England, Liverpool University Institute of Infection and Global Health, and Liverpool School of Tropical Medicine. It also included sessions lead by representatives of the Scottish Lyme Disease and Tick-borne Infections Reference Laboratory (SLDTRL) based at Raigmore Hospital and the Health Protection Scotland Lyme Disease sub-group.
Press Release: Lyme Resource Centre urges action at Lyme and Tick-borne Disease workshop at National Institute for Health Research on 22nd November 2019
Wednesday 20th November 2019
Lyme Resource Centre will be urging the authorities to step up their efforts to address tick-borne diseases at a workshop, "Lyme and tick-borne disease research in the UK: addressing the scientific uncertainties", to be held at the National Institute for Health Research on 22nd November 2019. We will be providing evidence of persistent Lyme disease infection and calling for acknowledgement of the complexities of Lyme disease and other tick-borne illnesses.
Inside Philanthropy discusses the US Cohen Foundation and how it has given a total of $60 million to address Lyme and tickborne conditions
How one foundation assumed leadership in the fight against a fast growing health threat.
"It was 18 increasingly unpleasant months between Alex Cohen’s first symptom—a pain in the sole of her foot—and her diagnosis of Lyme disease. Along the way, she was told she had everything from lupus, fibromyalgia and multiple sclerosis to mercury poisoning from her fillings. 'I had none of the above,' she said. 'Finally, I met this doctor in New York who treated me for Lyme, and it was a new day.' That was about 12 years ago, but it wasn't the end of her journey with Lyme disease."
Tick-borne encephalitis virus detected in ticks in the UK
Public Health England have announced that Tick-borne encephalitis virus has been detected in ticks in the UK for the first time.
"Tick-borne encephalitis virus (TBEV) has been detected for the first time in ticks in the UK. The findings are part of ongoing research by Public Health England (PHE) and the Emerging and Zoonotic Infections National Institute for Health Research (NIHR) Health Protection Research Unit at the University of Liverpool."
Response to Science Media Centre briefing on Lyme Disease
The views represented at the Science Media Centre briefing on 9th October and reported on in an article in the BMJ are one extreme of a diverse range of views on Lyme disease. However, there is an ever-increasing body of science showing that Lyme disease is not rare, that the tests are unreliable, that chronic illness is common, and that it involves more than 'residual symptoms' and can be life-threatening.
BBC One - Disclosure: Under the Skin
"Fiona Stalker travels around Scotland to investigate the spread of Lyme disease. One tiny tick under the skin can cause chronic illness but GPs are often slow to diagnose and to give treatment. Fiona hears from sufferers who feel let down by the health service and asks what more can be done to combat this debilitating disease."
Linlithgow Gazette
Tick-bites can lead to long term illnesses.
May is Lyme Disease Awareness Month and as ticks are most active from spring to autumn, it pays to know how to tackle them.
We are a Charity
We are celebrating the launch of our charity. Lyme Resource Centre was registered as a Scottish Charitable Incorporated Organisation (SCIO) with OSCR, the Scottish Charity Regulator, on 21st March 2019. Irish registration is also intended.